Tag Archives: mental illness

Suicidal Student Kicked Out Of Dorm Because He Might Negatively Impact Other Students

10 Feb

TW: talk of suicide

Imagine this: a student living in a university residence contacts his Residence Life don. He has fallen and injured himself, and there is blood everywhere. He is afraid he might die. He needs help.

Surely in this scenario the don would seek immediate assistance for the student. They would bring him to a clinic or perhaps a hospital. Once the student had recovered, they would welcome him back to residence – maybe even put up a banner or throw a little party.

Certainly the student would not be asked to leave the residence.

Yet recently when a similar situation happened at Acadia University in Wolfville, Nova Scotia, the student in question, Blake Robert, was told to pack his bags and get out.

The difference is that in the real-life version of this story, Robert wasn’t physically sick or injured. Instead, he was depressed and struggling with suicidal ideation. After reaching out to his Residence Life don, Robert was told that he could no longer remain in student housing because he was “a threat” to other students. He was told that if he were to die on campus, it would have a “negative impact on the psychological well-being of other students in residence.”

As he put it so succinctly in his article for Acadia’s student newspaper, Robert was basically being told to go die somewhere else.

Normally I don’t like to compare physical ailments with mental health issues, mostly because I feel like doing so often validates the exact position that it’s trying to deconstruct – namely, that we still live in a society that considers physical injuries or illnesses to somehow be more real and more worthy of time and attention than mental illness. I don’t want people to accept my mental health struggles because they’re pretending it’s the same as me having diabetes – I want folks to accept that I’m struggling with something that is scary and occasionally makes me want to die and is in fact nothing like diabetes. However, in this case I think examining an institution’s reaction to a mental health crisis versus how it would likely react to a different type of health crisis is fair; doing so shows the clear stigma and lack of understanding that still persist when it comes to mental illness.

The bald facts are that had Robert contacted his Residence Life don about a broken leg or the stomach flu or a bout of pneumonia, he would have been given prompt medical attention and no one would have breathed a word about him leaving student housing. Instead, the don spoke to him in person, set up an appointment for him with student counselling, and then two days later was part of a team of people telling Robert that he needed to leave because he wasn’t “safe” in residence. Apparently the best way to ensure someone’s safety is to remove them from their support network without any plan or offers of assistance. No wonder Robert felt as if he was being sent off campus to die; he was basically being told that the university wanted him to go to a place where he was no longer their problem.

At no point did anyone take Robert to the university health clinic or the hospital.

At no point was he given the chance to advocate for himself.

Instead, Robert was subjected to a disciplinary meeting where he was told that he might perhaps be allowed back into residence in September, if he was healthy enough. He was told that the Residence Life manager’s word was final; there was no chance for appeal. The Residence Life manager said to Robert that Residence Life dons are essentially like “landlords” and can’t be expected to care for students with mental health issues. Of course, this completely ignores the fact that an actual landlord wouldn’t be able to evict a tenant because of mental illness.

Says Robert:

“… Had I actually broken clearly expressed rules, or otherwise willingly threatened the safety of other students, I would have been afforded due process through Non-Academic Judicial, perhaps involving the RCMP. But suffering from a life-threatening mental illness is apparently seen as such an egregious crime and so dangerous that Student Services’ executive director, in charge of counselling, accessibility services, Residence Life, etc., found it acceptable that I was promptly ejected from campus without warning.

Just let that sink in – a student accused of committing a crime would likely have found themselves in a safer position than Robert did.

A student with pretty much any type of physical illness would have been offered some kind of care.

Instead, Robert was treated as if he was worse than a criminal.

Imagine being in a place that is so dark and frightening that you are sure the only way out is to die. Imagine being in that place and allowing yourself to be vulnerable enough to share how you feel with someone else. Now imagine that this person’s response is to tell you to get the hell out before you scare anyone. Imagine that, unlike Robert, you don’t have parents who live less than an hour away and can come pick you up. Where do you go? What do you do? And more to the point how is any of this supposed to alleviate what you’re feeling?

Sadly, Robert’s case is not uncommon – a similar story came out of Yale last year, and the psychiatrist Robert later saw at a local hospital said that universities often deal with suicidal students in this way. This is the lived reality for people living with mental illness – you’re sick, you’re so fucking sick that you might die, but don’t you dare tell anyone about it. Even the people who are supposed to help you are just as likely to hurt you.

I am so angry right now. I am angry and sad that this shit is still happening and huge institutions like universities are getting away with it.

This is why people don’t disclose mental illness. This is why people don’t ask for help. This is why people suffer and sometimes die without ever saying a word. This. This. This.

Where the hell are Bell Let’s Talk and “end the stigma” all that other feel-good bullshit when stuff like this happens?

gd240706acadia2

 

 

 

 

 

On Negative Self-Talk

12 Dec

I know what it must sound like to you whenever those ugly words start pouring out of me.

Every time I tell you that I’m so stupid, I’m a failure, everything is my fault and so on and so forth forever into eternity, you must think that what I’m really doing is asking a question, namely: Do you agree that these things are true?

Or else maybe it comes off as a command: Tell me that I’m wrong. Tell me that I’m worth it. Validate me.

Maybe it sounds like a dare or a taunt: Go ahead, fight me on this. Just try.

It must seem like I’m looking for some kind of reaction – a hug, or an eye roll, or something in between the two, an affectionate sort of “there she goes again” crossed with “don’t worry, you’re not monster.”

The truth is that when I fall into the spiral of negative self-talk, even when my words seem to be directed at another person, they’re almost always meant for me and only me. These words are also a compulsion, and in the way of many compulsions they act as a sort of charm or a spell to ward off something worse. They’re a way of beating everyone else to the punch, and they also function as a funny type of pep-talk. But even when I say them publicly, they’re never meant for anyone but me.

Sometimes it’s almost like I have to say something out loud in order to know whether it’s true or not. It’s similar to how I can’t memorize something unless I’ve actually muttered it through several times to myself, except that it’s more like I have to shape my mouth around these vile thoughts about myself to see if they have a taste of truth to them. A thought seems so insubstantial that it could be anywhere on the realm of possibility, but a spoken or written word – well, that’s a different kettle of fish, isn’t it?  A thought is like cotton candy, melting and disappearing the moment you try to properly consume it; a word has heft. Speaking or writing something gives me the chance to weigh it against reality, to see which side the scale comes down on.

Negative self-talk is also a way of loudly and triumphantly declaring all of the terrible things you worry that other people are thinking about you. It’s a way to take the sting out of an insult, a way to toss your head and wink like you don’t care. Theoretically, what’s the hurt in someone else calling you stupid or ugly or pathetic if you’ve already embraced those awful things yourself? It’s a pre-emptive shedding of your emotional clothes before another person can come along and lift up your skirt; it’s biting your lip, hard, so that you don’t feel the needle in your arm. But of course you do still feel the needle, and even when you invite people to stare at your naked feelings their gawking sneers still hurt. You’re not really beating anyone to the punch, you’re just pounding away at yourself like a schoolyard bully landing one hit after another on some poor, defenceless, cowering kid.

Whenever I talk badly about myself, it turns into a sort of Harry Potter Devil’s Trap situation – the harder I struggle and the more I tell myself to stop, the worse it gets. Like, if I start of by saying that I’m stupid and can’t handle even the smallest things, then it escalates to saying that calling myself stupid is proof of my own stupidity, and having this meltdown is proof that I can’t handle my life, and then anger and shame that I’m letting other people see me going through this, with every added layer just making me feel worse and worse and worse about myself. Once you’re down in that pit, there’s no way out – you’re just scraping your fingers against the walls, unable to climb or dig through and ultimately only hurting yourself more. My own negative self-talk validates my low self-esteem, and in my rational moments I know that. But when I’m feeling awful about myself, the only way to fix it seems to be to drive the knife deeper.

I know that the negative self-talk serves no real purpose, no matter how I try to frame it or justify it, but it’s hard to quit. It’s an internal groove on a record and whenever my mental needle slips into it, the music needs to play the whole way through before I can put on something else. I’m slowly learning to pull off the needle mid-song, but it’s hard. If I tell myself to stop at the wrong time and I can’t or don’t for whatever reason, then that just leads to feeling awful over the fact that I’m still going. Right now I’m at the point where I can pick out harmful thought patterns after the fact; later, once I’m not sobbing stormily and feeling like the world is ending, I can look at what how wrong and harmful what I was saying about myself was. But when I’m in the middle of berating myself, I’m not in a place where I can listen or change – it’s like this howling mess that blocks out or distorts anything that doesn’t agree with what it says.

So I’m working on this. Along the same lines, I’m learning to Take A Compliment. Whenever someone trots out something nice about me, I just breathe deeply and say thank you instead of explaining to them all the particular ways they happen to be wrong. Sometimes, if I’m not too consumed in the haze of panic that compliments set off in me, I’ll remember to compliment them back. I hope that someday my negative self-talk will work along these lines – like, whenever I feel the compulsion to do it, I’ll just take a deep breath, smile, and say no thank you, brain. Not today. I’m too awesome for your shit right now.

184398_10152373691225215_965134279_n

Fuck Busy

13 Oct

Late last night I was cruising around on Pinterest because hey I’m a boring 30-something mom and that’s what I do when I can’t sleep. Which, by the way, is every night, meaning that I’ve developed a bit of a Pinterest habit, among other things (my  insomnia-beating arsenal includes such soothing activities as: watching documentaries about the Chernobyl “liquidators,” hate-reading the blogs of conservative white dudes, and sending slightly incoherent late-night messages to my friends and acquaintances). Anyway, I was happily scrolling through pictures of pretty landscapes tragically marred by trite sayings (example: a gorgeous mountain at sunset with DON’T GIVE UP, THE BEST IS YET TO COME scrawled across it in white letters) when I came across this:

971f2a7939de28527f1e24e04e24a87b

I had one of those moments where I was like, “oh.” And then I was like, “yes.” And then I had this huge mishmash of complicated feelings that I’ve been trying to untangle ever since.

Busy is how I keep myself from having enough time to think the thoughts that might completely derail my day.

Busy is how I distract my mind from the refrain of you’re not good enough, you’re not trying hard enough, nobody likes you

Busy is word that I hold over my head like some goddamn Sword of Damocles, as in: you’re not busy enough, you should be doing more, you don’t deserve a break, just keep going.

Busy is the first thing I think of when I wake up – will I be busy enough today? Will I get enough done? Or will I be a failure?

Busy is the last thing I think about before I finally drift off into a sleeping-pill-induced sleep – have I been busy enough? Am I satisfied with my day? Or have I been a disappointment, both to myself and to the people around me?

Busy is my anxiety-charged brain, either leapfrogging from one thought to the next, stringing together conclusions so quickly that I can hardly breathe, or else fixating on one idea and spinning it over and over, like a sore tooth that you can’t stop running your tongue over even though you wince every time.

The glorification of busy is the reason that I struggle so hard to relax – because I’ve never really, truly been busy enough during the day to deserve a rest. I sometimes ask myself what “busy enough” would look like, and I can never seem to come up with a solid answer. I tell myself that “busy enough” or “accomplished enough” is just something that I would intuitively feel once I’ve reached that goal post. But I never feel it, so I always have to assume that it’s just another day of not being good enough.

The glorification of busy is why my go-to solution for anxiety and depression is to try to out-run them, as if they’re that big stupid rock in the Temple of Doom and I’m Indiana Jones, always able to stay one jump ahead of being crushed.

The glorification of busy is why I’m sitting here in my mother’s living room on a long weekend writing a goddamn blog post because I feel like I just haven’t satisfied my daily requirement of “getting shit done.” Never mind that I’m supposed to be lying in a pool of post-Thanksgiving turkey-coma drool. I tried that. It didn’t feel good; instead, it felt like I was wasting precious time during which I could have been doing something important, like maybe memorizing the periodic table.

We live in a culture that praises “busy” as the best thing a person can be – both in terms of employment and personal life. We’re encouraged to cram as many experiences and events and accomplishments into a 24 hour period as possible – and then we’re encouraged to share our interpretation of those experiences, via tweets and pictures and pithy Facebook updates, in as close to real-time as possible. Even when you’re relaxing or having fun, you’re still often tapping into that busy mindset. “Am I sufficiently relaxed? Should I be having more fun? What can I do to optimize this experience? If I’m not feeling good, is that because I’m just not trying hard enough?”

And while I would on the one hand argue that staying busy is sometimes what stops me from having a full on tear-drenched meltdown in the middle of the day, I would also say that living in a culture that promotes “busy” as the ideal has for sure shaped my ideas of how to handle the sick panic of repetitive thoughts or sharp flashes of fear that set fire to my nerves. If I didn’t live in a society that glorifies busy, would my response to anxiety be to immediately throw myself into some type or work or another? If I didn’t think that busy was the be-all-and-end-all would I maybe take a few deep breaths and try to slow my thoughts instead of crushing them with other, different, faster thoughts?

Fuck busy.

Fuck the fact that I crave busy as a way to block out all the other shit that’s going on in my head.

Fuck the impact that busy has had on my ability to zone out, to shift gears, to slow down.

Fuck tweeting about how much fun I’m having when all I can think about is what I’m doing next, and then next, and then next.

Fuck the sense of dread that I have when faced with a day full of empty, unplanned hours.

Fuck the feeling of inadequacy that the glorification of busy has left me with.

I just want to learn how to shut off the busy voice in my head for five minutes. I just want to know what quiet is like. I just want to close my eyes at the end of the day and sleep without having to Pinterest myself into an exhausted stupor.

Fuck busy.

TTC Posters pt. II

16 Aug

Tonight I spoke on the phone with Joe Burton, the president of Mystery Room Ltd., and I was honestly blown away by our conversation. He apologized right away for the posters on the TTC, and said that while he hadn’t thought about the reaction that people living with mental illness might have to the idea of a “psych ward” escape room, he now totally understood how hurtful it could be.

I feel like it’s so rare for people to genuinely examine why something they’ve done or said is problematic and then offer an apology for it. Like, so damn rare. So I just want to take a minute to recognize how rad Joe Burton is. He is a real, honest-to-goodness solid human being. Thank you, Joe.

Here is the email he sent to the reporter from The Toronto Star, which I found really touching:

Thanks [redacted] for bringing this story to my attention.

I just want to let everyone know, particularly the lady in question, that it was not our intention to offend anybody with the theme name “Psychiatric Ward”.
 
We were looking for themes/names for our rooms based on pop culture and Hollywood movies (e.g. “Psycho Ward”, 2007).
However, after reading her blog, we can truly understand how someone with mental illness can be really hurt by such a portrayal.
 
We have renamed the room to “Haunted Hospital” and we will take the following additional actions…
1.We will contact the lady who wrote the blog to explain and apologize.
2.We will contact the TTC and ask them to change the posters.
Sincerely,
Joe Burton (President)
Mystery Room Ltd.

Ahhhhhh, I think my little heart might burst. It’s so lovely to have these occasional reminders of how amazing people can be.

Happy weekend, y’all.

ttc-map2

An Open Letter To The TTC – Please Remove These Posters

11 Aug

Dear Toronto Transit Commission,

I am writing with regards to the following poster found in some of your subway cars advertising “Mystery Room,” which is apparently a sort of spooky role-playing game where you have to escape scary situations.

10569068_10154504388060215_7336785862527024230_n

As you can see, some of the frightening scenarios that you can participate in include “Satan’s Lair,” prison, something called The Mummy’s Curse and a psychiatric ward. All of them are problematic in one way or another, but one of them hits particularly close to home for me.

I am writing this because I am a person who has spent time on a psychiatric ward – in fact, I’ve been a patient at multiple mental hospitals. The first time was when I was sixteen – I saw a clinical psychologist to help figure out what medication would best manage my depression. The second time was when I was twenty one and suicidal – that time I was admitted and spent the night in the hospital. Last year I went to the CAMH emergency room because, again, I was depressed, overwhelmed and suicidal. I was accepted into the cognitive behavioural therapy program there and spent several months completing that as an outpatient this year.

I am not scary. I am not violent. I am not a monster.

I am not some trope that should be used to scare people in a haunted house. I am a for-real person, who struggles daily with an illness that colours nearly every aspect of my life. The same goes for every other person living with mental illness. We’re not the punch line to your “crazy” joke. We’re people coping with very real, sometimes deadly illnesses and that alone is a hard enough row to hoe without tossing mental health stigma on top of everything else.

And that stigma is exactly what these posters perpetuate – both stigma against the mentally ill and stigma against psychiatric hospitals. It plays right into the old belief that people with mental illnesses are dangerous and violent, even though we’re far more likely to be the victims of violence than perpetrators of it. It also makes psychiatric hospitals look like frightening, terrible places, which is pretty discouraging to someone who needs treatment for mental health stuff. Dealing with this shit is scary enough without advertising campaigns like this.

To make matters even worse, here’s what Mystery Room has to say about the mental hospital scenario on their website:

Ward 15 is the place the mentally disturbed were contained. Dr. Johansson had a passion for experimenting on the unanesthetised living. The patients grew mad, losing the ability to speak as their throats ruptured from constant screaming. These people now haunt the ward, seeking and exacting their revenge on unsuspecting victims. As you enter the ward, one thing is certain: it is going to take all of your knowledge and skill to get out alive.

That is actually a thing that has happened. I seriously cannot stress that enough – that is actually a thing that has happened to psychiatric patients in this country. In the 1950s, the CIA performed “mind control” experiments on patients at a Montreal mental hospital. Similar experiments were done in the United States. To make light of this type of violence inflicted against the mentally ill is beyond awful, and to turn it into a form of entertainment makes me pretty much choke up with rage. There are victims of these experiments who are still alive, and you’re advertising a game that makes a joke out of the horrific things they’ve experienced.

Look, Robin Williams died today of apparent suicide; according to his publicist he was “battling severe depression” in the time leading up to his death. My chest hurts for him and his family, and it’s hard not to think about all the other people whose illnesses have or might turn equally deadly. People with mental illnesses are failed by our society on a daily basis, and every time we let something like this Secret Room program pass without saying anything, we are failing the mentally ill even harder.

I’m asking you to please take down these posters. They are not appropriate for public transit, and they do not reflect the values of this city. We, as citizens of Toronto, deserve better than this.

Sincerely,

Anne Thériault

Anyone wishing to lodge a complaint about these posters can do so here.

P.S. here is a list of suicide crisis lines – if you are thinking of hurting yourself, please call someone

Pharmacopeia, or, The Drugs Don’t Work

11 Jun

TW for talk of suicide

Some days, as I rush around the apartment trying to get ready to face the world, I can’t help but feel like a traveling pharmacy. Inside the vast expanses of my purse, along with my laptop, my wallet, my keys, my book-du-jour, two shades of Sephora lipstick (neutral pink “charmer” and come-at-me crimson “tango”), my headphones, my phone, assorted bandaids, bobby pins and hair elastics, I neatly arrange the bottles of multicoloured pills through which I measure out my life like those metaphorical coffee spoons. Blood-red prescription iron supplements, safety-vest-orange Zoloft, dingy red-brown Seroquel, electric blue Imovane and, of course, the virginal pink birth control pills. My own private stash.

The pills are like little hand-holds to grab onto as I swing myself through my day. Orange and red with my breakfast, to keep my mood somewhere above apocalyptic-crying-level and to boost my energy, red again with supper, to keep my iron levels up over night, then red-brown, pink and blue at bedtime to respectively “enhance” my anti-depressant, make sure that I don’t accidentally bring forth another life onto this dismal planet, and then float me off to sleep the sleep of the innocents.

I’ve been on psychotropic drugs since I was sixteen, and can give you a poetic sort of laundry list of all the different types I’ve tried: Paxil, Prozac, Remeron Effexor, Elavil, Ativan, Wellbutrin, each at varying and increasing dosages. Paxil was the first one they tried on me, and when it perform as expected, they kept increasing the amount until I was a miserable wreck: twenty five pounds heavier, lethargic, awake all night and falling asleep in class. The funny thing was that my doctor kept telling me that it was working, that he was seeing improvements. Never mind that I felt worse than ever – to him, it definitely seemed as if I was getting better. It took months of arguing before he agreed to try a different drug.

The latest addition to my personal valley of the dolls is the Seroquel, typically used as an antipsychotic. I wondered if my doctor was trying to tell me something. I asked Nathan if he thought my doctor was trying to tell me something.

Me: It’s an antipsychotic. Do you think my doctor thinks I’m psychotic but just doesn’t want to say anything in case it upsets me? Am I psychotic?

Nathan: The medium isn’t always the message, Tiger. [Editor’s note: he likes to call me Tiger. Sometimes also Buddy or Slugger or Buckaroo. One time it was Tex.]

Me: But Marshall McLuhan said it was!

Nathan: Heritage Moments aren’t always right.

But then again, sometimes they are. So put that in your pipe and smoke it.

I’ve never really been able to tell if these drugs help at all (except for the sleeping pills, which are an insomniac’s best friend, and, of course, the birth control, thank god). Sometimes I take them and things get better, but it’s hard to know if that’s from the pills or from the natural dips and rises of my inner life. But I keep taking them, even after I swear that I won’t. They’re well-marketed, these drugs, and at my weakest moments I always find myself acquiescing. The doctors make a good case for acquiescing.

Those doctors always sell me on the antidepressants by telling me that I have a chemical imbalance, a lack of serotonin that causes my brain to short circuit and makes me want to die. That’s the best way to describe what it feels like to be suicidal – a short circuit, a glitch in the system, a design flaw. Killing yourself becomes the answer to everything. Your mind becomes like a record needle that jumps the groove, a sort of skip in your mental process where instead of going forward and thinking up solutions to your problems, all that you can come up with is, the only way out is to kill yourself. And the drugs are supposed to fix that skip, supposed to make it so that your record can play all the way until the end, and then you can flip it over, then put on another record, and so on ad infinitum, happily ever after.

The idea of a chemical imbalance is supposed to make you feel like you’re not crazy in the 19th century meaning of the word;  you’re not some kind of incurable case about to be shipped off to Bedlam. What’s wrong with you is physical – like a diabetic who lacks insulin (they’re always comparing selective serotonin reuptake inhibitors, or SSRIs to insulin for some reason), you just need a little medical help replacing something that your body is failing to make on its own, and then you’ll be fine. It’s not really a mental illness so much as it is a physical condition with mental manifestations. You’re not like those people.

By those people they mean, of course, the people with schizophrenia, or borderline personality disorder or some kind of nonspecific psychosis. Doctors never let you forget that there is a hierarchy of mental illnesses, one which you might slip down at any given moment. Doctors want you to remember that your place in the mental illness food chain is a relatively coveted one, lest you get any big ideas about going any crazier.

It’s easy to internalize the stigma against mental illness. Sure, you’re mentally ill, but you’re not like them. You don’t ever want to be like them.

Never mind that you already are one of them, no matter how you frame it. Never mind that all of your attempts to distance yourself, to other, only make things worse for everyone. Because you’re basically giving healthy people permission to other you.

You and your delicately imbalanced chemicals.

The chemical imbalance theory has been around since the 1960s. There was never much research done into the idea; it was just something that seemed like it could be right, and everyone sort of ran with it. Maybe they couldn’t properly test for that sort of thing back then. Maybe theories were the best they could go on. But now, fifty years later, it might be time to re-examine those theories.

According to Robert Whitaker, author of Anatomy of an Epidemic: Magic Bullets, Psychiatric Drugs, and the Astonishing Rise of Mental Illness in America, doctors have known for a long time that the chemical imbalance model is likely flawed. In an interview on CBC’s The Sunday Edition, he says,

And as early as 1998, the American Psychiatric Association in its textbook says we’re not finding that people with depression have any abnormality in their serotonin, but because it’s such an effective metaphor for getting people to take the drugs and sell the drugs, it’s continued to be promoted.

According to Whitaker, people who take psychiatric drugs were more likely to still have symptoms five years later than those who didn’t take psychiatric drugs. Because, see, here’s the catch – people who take SSRIs but don’t have low serotonin to begin with begin to rely on those drugs to manage their serotonin levels. SSRIs actually reduce the brain’s ability to produce serotonin.

So maybe the drugs have never actually been helping me, or any of us; maybe all they’ve done is create a population of people who are dependent on psychiatric medication.

And maybe The Verve were right after all, and the drugs don’t really work, they just make you worse.

It bears thinking about, anyway.

I’ve been reading about lobotomies recently (as any good mental health patient does, I suppose), and I came across this gem in Ronald Kessler’s The Sins of the Father describing Rosemary Kennedy’s lobotomy:

We went through the top of the head, I think she was awake. She had a mild tranquilizer. I made a surgical incision in the brain through the skull. It was near the front. It was on both sides. We just made a small incision, no more than an inch.” The instrument Dr. Watts used looked like a butter knife. He swung it up and down to cut brain tissue. “We put an instrument inside,” he said. As Dr. Watts cut, Dr. Freeman put questions to Rosemary. For example, he asked her to recite the Lord’s Prayer or sing “God Bless America” or count backwards….. “We made an estimate on how far to cut based on how she responded.” ….. When she began to become incoherent, they stopped.

Sometimes it’s hard not to feel like doctors take the same approach – albeit on a much smaller scale – with psychiatric drugs. Increase the dosage until the patient becomes incoherent, or at least docile. Push the pills until they don’t feel anything, because feeling nothing is better than feeling sad or confused or anxious. Don’t offer counselling, or therapy, or life management skills. Just fork over pills pills pills until some kind of effect (or affect – little psychiatric joke there for you) is achieved.

The truth is that we don’t know how psychiatric medication works – we just know that sometimes it does. If you’ve ever taken the pills, you know that it’s a lot of trial and error until you find something that gives you some kind of relief. Which is great and everything for the people who benefit from it, but where does it leave the rest of us? We become guinea pigs of a sort, choking down brightly-coloured pill after pill, praying that something, anything will work. Because, honestly, it’s better than the alternative.

The alternative is, of course, that the brain is still a vast unknown. That we are only just barely beginning to grasp its complexity, and we may never fully understand it. That those of us who suffer from mental illness are sailing in uncharted waters, with no stars to guide us. What looks like Cassiopeia or Orion to everyone else is just a jumble of unknown lights to us. And maybe for some, the drugs make the stars realign into their proper order – but for the rest of us, maybe we need to begin creating our own private constellations to ferry us from one point to another.

The thought is terrifying, and I feel unequipped to deal with it. I’m not an astrologer. I just want the same stars as everyone else.

I’m going to keep taking the drugs, at least for now. They feel like a sort of safety net, and I know that I’m not ready to walk the high wire without them. But someday, someday soon, I want to begin to chart my own inner universe. I want a map of my own personal stars, and there isn’t anyone else who can do that for me. If I’m not willing or able to play amateur stellar cartographer, well, then, what’s the point? A lifetime of one brightly-coloured pill after another, each with its own dreary side effects, none of them even remotely effective. I can’t live like that.

But I haven’t lost faith that I can, somehow, find a way to live.

Pills

When Getting Better Is No Longer An Option

27 Apr

Trigger warning for talk of suicide

I used to think that I would outgrow it.

I used to think it was just hormones. The same hormones that caused the constellation of angry red pimples on my face and back. The same hormones responsible for the dark, wiry hair between my legs and nearly unnoticeable A-cup-sized swell of my chest. I thought that once the hormones settled down, I would feel better. Normal. But even once I grew used to my new body, even once I hit my twenties and everything was supposed to level out, I still felt it. The same howling misery, the same blind, raging creature whose claws and teeth were sunk somewhere too deep to find, was still there.

I did not outgrow it.

I used to think that I would get better, if by getting better I meant being cured. I used to think that I would find the right combination of drugs and therapy and life choices to make this thing, whatever it was, go away. Or maybe I would just wake up one morning and it would be gone, instantly and inexplicably, the same way it had come. I thought that it might recede like the tide going out, and then, like a bare beach scattered with seaweed and shells, I would go back to being the person I’d been before, only with a few small relics left over from what I’d been through.

I did not get better.

I might never get better.

These past few months have been hard ones. Really hard. And I don’t know how to talk about this, except that I think I should. For the last weeks of March and the first few weeks of April I was suicidal. Suicide was all I could think about. I didn’t want to die, exactly, but I didn’t want to be alive, either, and I couldn’t think of any other option. I couldn’t sleep. I couldn’t read. I’d injured my hamstring, so I couldn’t really do yoga. I couldn’t string two thoughts together. I couldn’t even follow a conversation. All that I could do was get up in the morning and drag myself to work, and then drag myself home and cry. On weekends Matt would take over childcare, because I couldn’t get out of bed. Everything seemed awful, without any understanding of why it was awful. I felt like I’d come up against a brick wall, and all I could do was scratch at it until my nails broke and my fingers bled. I couldn’t imagine what the future would look like, other than more of the same but worse.

None of these are especially good reasons for being suicidal. But the thing about being suicidal is that you don’t need a good reason. You just are, and you don’t know how to get out of it. What makes it even worse is that you can’t talk about it – suicide is too big, too scary to bring up with your friends and family. And if you mention it to a health professional, well, I mean, forget it. All they want to do is lock you up so that you can’t do it (and rightly so), but they don’t seem to want to talk to you about the whys and hows of the way that you feel. Which means not only is everything awful, but on top of that you don’t have any kind of outlet. Because you don’t want the worry or the pity or the fear of the people around you.

So you just don’t talk about it.

Things are slowly improving now, but I know it will come back. That’s the funny thing – when I’m well, I’m constantly aware of it waiting for me, biding its time, sidling around me like a constant threat, and yet when I’m in the middle of a breakdown I can’t imagine that I’ll ever be ok again. When things are bad, the only thing that exists is the pain I feel. That is my only reality. While some part of me logically knows that it’s a cycle and eventually I have to come out of it, there is just no way to make myself believe that fact. The only fact I can trust in is how terrible everything is in that moment.

I’m learning to live with the fact that I am not going to get better, if by not getting better I mean that I am probably going to live with depression for the rest of my life. This thing, this goddamn soul-sucking thing, is not something that I can cut out, or drown, or poison. I can’t look at a CT scan and point out where it is. I can’t even really know anything about it, except that it lives inside of me and feeds off of me and leaves me aching and exhausted and so sad that sad isn’t even the right word for it. I don’t know what the right word is; maybe there isn’t one.

I’m also learning to live with the fact that I am never going to be the person I was before all of this started. I’m not even sure that it makes sense to want to be her anymore – she’s an absurdly hopeful little thirteen year old girl with no life experience and little understanding of how the world works. She’s the last memory I have of what I was like before this dark creature began nesting inside of me, and for a while I clung to her image as something that I could maybe someday achieve again, but I need to recognize that she’s gone. She’s gone and she is never, ever coming back.

Mental illness destroyed who I was. And I’m at a place now where I’m trying to recognize that that’s not a bad thing. I mean, I don’t think that it’s a good thing either. It’s just a thing. A fact. A truth. My family and I have had to adjust to this reality; we’ve had to mourn the loss of who I was and who I might have been, while at the same time accepting the person who was left behind. It’s a funny sort of thing, a weird feeling that I’ve somehow lived two lives – like a building gutted by a fire whose façade stays the same but whose interior, once restored, is entirely different.

I don’t know how to explain it any better than that.

So I’m learning to live like this. I’m learning to ask for concrete things – help with housework, help with childcare, help with routine daily tasks. I’m getting used to the idea of talking to my employer about my mental health, and negotiating the possibility of time off when I need it. I’m trying to be better about accepting the fact that sometimes I just need to lie in bed and do nothing. I’m trying to be better about accepting all of this, because fighting it tooth and nail has gotten me nowhere.

I’m trying to tell myself that I am not weak. I am strong, and I will get stronger. The person that I was might be gone, but this version of me, the one that exists now, is just as good as she was – mentally ill, yes, but kind, compassionate, smart, funny, and with so many people who care deeply for her. She, too, is worthy of love.

If you are depressed, experiencing suicidal thoughts or otherwise need someone to talk to, please call 1-800-273-8255

For international readers, here’s a database of crisis centres listed by continent

1926769_10154076149725215_518988513332983215_n

It’s Just Your Depression Talking: On Agency and Mental Illness

31 Jan

I walked out of my therapy appointment yesterday. I don’t mean that I stormed out or anything – I politely told my therapist that I wasn’t in a great headspace and that talking about it was making me feel worse instead of better – but still. It felt like a rookie move. The kind of thing a sulky teenager would pull when things weren’t going the way she wanted them to. I felt that a real grownup would have stuck it out, pushing through all the bad stuff and coming out the other side. Because that’s really what talk therapy is, isn’t it? Wading through the shit and dealing with it, with the outcome of all that hard work being that you’re a better, happier, healthier person.

Except yesterday I couldn’t, or wouldn’t, wade. Talking wasn’t getting me anywhere – I was stuck in an endless loop of the same anxieties over and over again, and rehashing them just felt like poking an open wound. Reviewing my situation wasn’t giving me any special clarity, my therapist’s insights weren’t helping, and I was getting more and more frustrated and upset as the hour went on. It felt so stupid to interrupt my workday, drag myself halfway across the city and pay good money just to sit there feeling terrible. I didn’t want to talk. I didn’t want to think. I just wanted to do something, anything, to shut off my useless brain. So I left, went home, and a crawled into bed.

When I told my friend about what I’d done, she asked, “Do you think that was you making the decision to leave therapy, or your depression?”

Framing a depressed person’s behaviour and speech as being influenced by their illness can seem helpful. I’ve certainly said things like, “that’s not you talking, that’s your depression,” often enough, both to myself and other people, as a way of mitigating negative self-talk. It works because it acts on the idea that depression feeds us vicious, nasty lies about ourselves, and that if left unchecked these lies will fester deep in our minds, crippling our self esteem and destroying our self-image. So when someone is telling you how worthless they are, how pathetic, how unloveable, the appeal of reassuring them that this type of talk is a function of their illness is undeniable. But telling someone, especially someone who is suffering from a mental illness and has spent years dealing with all the stigma that comes with it, that it’s not really them talking can be downright dangerous. Because once you’ve labelled someone’s voice as not being authentically theirs, once you’ve convinced yourself that what they’re saying isn’t coming from them but rather some invisible bogeyman you’ve labelled depression, you’ve taken away some of their agency. You think that you’re telling them something positive, but really what you’re saying is, “I don’t think that your words are your own.

How does anyone talk themselves out of that corner? Once their words and actions become suspect, how can they make you believe that it’s really them and not their depression? How can they have any agency when everything they do or say is written off as being done or spoken by some sort of evil spirit possessing them? It’s a slippery slope from there, and one that many people suffering from mental illness have faced before. Because once it’s been decided that it’s the illness and not the person talking, then that person may be considered to no longer be competent to make their own decisions. And then things can get really, really bad.

Are my depression and I really two separate entities? And is it necessarily useful to create this other, this monster, that represents all of my misfiring neurons and dysfunctional cognitive processes? This is something that I’ve been wondering about, and I’m still not sure what the answer is. It’s tempting to believe that depression is a sort of slippery parasite that changes my behaviour in order to further its own agenda, like that ant parasite that makes them climb to the very top of a blade of grass in order to ensure that they’ll be eaten by sheep and thus pass the parasite on. But I’m not sure if it really works that way.

I’ve heard of cancer patients imagining that their tumours are evil invaders, and then meditating on the idea that their bodies are fighting these bad guys off. Maybe that works when there’s something measurably wrong with your body, when you can pinpoint the existence of cells gone haywire, masses that have formed, blood counts run amok, but my depression is, for better or worse, my own brain. If my depression is smart, it’s because I’m smart. If my depression is tricky, then it’s because my mind has given it the tools it needs to trick me. I can learn how to manage it, how to work with it or maybe even outsmart it, but I can’t cut it out. And though it’s tempting to imagine it as a sort of demon that seizes me, takes me over and forces me to do it’s bidding, it’s not like that. Not really. It’s just my poor, sick brain.

There have been times when I’ve felt relief at hearing someone tell me, “That’s your depression talking.” There have been times when telling myself that has been a useful way of checking in and re-evaluating a situation. But there have been other times – many other times – when I’ve thought, “If this is the depression, then where am I? And why do you get to decide what my voice sounds like?”

Sometimes I make bad choices. Sometimes I say stupid things, especially about myself. Sometimes my depression really does influence my self-image, how I talk to myself, how I behave. But I am still me. I am still myself. I have my own voice, and when I speak, the words belong to me alone.

IMG_4595

Guest Post: Life As A Mountain Hike

7 Nov

My husband Matt wrote the following post about how challenging it can be to have a partner who is depressed. If you are at all technically inclined, you can check out his own blog, Quoth The Runtime, “Segmentation Fault”. He mostly writes about programming, but he also posts some pretty great stuff about the rampant sexism and misogyny in his industry.

LIFE AS A MOUNTAIN HIKE

I’ve come to the conclusion that the best metaphor I can conceive of for everyday life is that life is a mountain trail. Some days you have to work hard to make any progress, other days are simple, and some are nicely balanced. You can see beautiful vistas, or find yourself in the bottom of a dark valley. The weather can be reflective of your mood, a lot like what you see in movies (there’s a reason why it always rains during movie funerals). Some days the air’s become so thin that it’s a struggle to do anything of any great significance. You see your friends from time to time on the trail, and perhaps you’ve arranged to meet sixty miles up the trail in two days, and you only hope it’s downhill or level at worst, because you have a lot ground to cover in not much time.

So, given that life is a mountain trail, what is it like when your partner is depressed? It’s like hiking with someone with impaired lung function. They need to carry oxygen, and some cases are worse than others. Some patients need to basically have the mask on the whole time, while others can operate normally with a couple of deep breaths every once in a while.

How does this affect your relationship? You both have to take more load. Your partner has to carry the tank, so you offset that increased load into your own pack. But you’re also thinking about their oxygen supply. Sometimes it’s “do they have enough air in the tank,” but when you’re really paying attention, it becomes “do they have enough airflow”, and usually that only happens when their depression becomes apparent again. The big problem with depression, not just socially, but functionally, is that it’s invisible. Depression quite literally changes how the patient thinks, both on and off treatment. Enough airflow from the tank, and your partner is brought up to baseline.. except for the fact that they’re still carrying the extra weight, so you’re still taking some of what would otherwise be their load! With the right treatment, the patient can feel reasonably close to “normal”, but if they don’t maintain the treatment, for some reason–maybe a disrupted routine means not taking their medication for a few days, or maybe they’re feeling so good they self-moderate to a lower dose–or their circumstances change and now they just aren’t getting enough air (perhaps their brain chemistry has adjusted), then they can’t perform as well… and as their partner, it’s up to you to keep an eye on that. It’s not just your partner’s concern.

Living with a depressed partner is hard. In addition to everything that normally comes up in any relationship, you’re ultimately their partner in managing their depression, too. Whether it’s as simple as giving them some slack on the harder days, and letting them do their thing while you pick up the housework, or something as detailed as collaborating in their treatment plan, their depression will always be there, whether it’s forgotten, or it’s the elephant in the room, or it’s something than can freely enter the conversation as necessary. But remember, it’s invisible, and it’s insidious. Because it’s part of how your partner thinks (and not, say, an obvious but treatable impairment, like a significant limp) it’s all too easy to forget that it’s even there when it’s well managed.

It’s easy to become resentful that you’re doing more of the housework, because it’s easy to forget that it’s not that your partner is being lazy, they’re depressed. It’s easy to forget that depression manifests itself in more than just tears; it can also be lack of energy, lack of motivation, or lack of interest. When depression isn’t obvious, it’s all too easy to forget that it’s there, and then it’s all too easy to establish a mental separation between your partner and your partner’s depression, because you might only think about it when they’re well and truly despondent. While you and your partner may not want their depression to be a part of their identity, it’s critical to remember that it’s always there, in the same way that an amputated limb is always missing, even if it’s been replaced by a prosthesis.

And when you’re in a long-term relationship, you’ve been carrying the extra weight for as long as you have, it’s easy to forget that what you don’t see in your partner’s backpack is their failing lungs and their oxygen tank. If your partner’s been having an easy time with the hike–perhaps a couple of huffs on the tank a day is all they’ve needed for months–it’s easy to forget why you’re carrying more of the weight. It’s easy to forget that it’s so that they can simply keep up with the pace of every day.

But when the depression becomes apparent again, naturally, you respond with compassion and empathy. You encourage your partner to talk about it, or you give them their space, but if you forget, or don’t realise, just how bad their depression really is when it’s in force, then you may forget how your partner may really need you to respond when their depression strikes. Of course, the deeper problem with this is that your partner is an adult, or at least competent to make their own decisions. It’s very difficult to convince who a person who doesn’t believe they need air–they’re just a tired today, or the trail’s harder than they expected–that they really do need air… At least, it’s hard to do that without coming off as condescending and paternalistic (and, let’s be honest here, if anyone is liable to be offended, and rightly so, by paternalistic talk from her husband, it’s Anne) when you’re in a partnership of equals.

My own overwhelming desire to respect Anne’s agency and autonomy has meant that, on a number of occasions, I’ve dropped the ball badly, because I have a pretty significant mental block around telling anyone I love, “you need to do x.” Particularly so when I know that the thing I believe they need to do is something they would ordinarily object to. Anne has already told the story about how her postpartum depression drove her to pharmaceutical help; but I don’t think she mentioned in that story her difficult history with pharmaceutical treatment, or with psychotherapy. I had broached both ideas in the past during lesser episodes, and met with resistance on every occasion. I didn’t want to press the issue again (and I didn’t know had truly bad her depression had become until I read that post), and every time her depression has resurfaced since, I’ve had a hard time finding the strength to ask basic things like “have you been missing your medication,” or, “have you been using your blue lamp,” because I want to be able to trust that she has, and I don’t want her to think that I think she’s forgotten, or incapable of taking of herself. I don’t think that she can’t take care of herself, but I worry, at those times, that her depression will colour how she hears these things, or tell her that her treatment isn’t working, and that she should just give up.

But as her partner, she does need me to be able to say these things (whether she’ll admit it or not). She needs me to be able to tell the difference between herself talking and her depression talking. She needs me to be able to see that the trail’s too hard for her today, and figure out what needs to be done, whether it’s replace the tank, try to open the flow more, take more of the load (or straight out jettison some stuff, or find someone to help), or even just make her stop and sit for a while. Maybe she needs me to call for help, but I’ll never know–and she may never admit it, even to herself–if I can’t talk to her about her depression.

We’ve both recently started following TSN anchor Michael Landsberg’s Twitter feed. Landsberg, if you weren’t already aware, also suffers from clinical depression, and has written about it on his blog for Off The Record, particularly in light of Wade Belak’s death. Landsberg has been promoting a topic on Twitter, #sicknotweak, in the buildup to launching a website of the same name, in order to promote a change in how we, as a society, view depressed people–that they aren’t weak, but they’re sick, just with something that isn’t normally visible. It’s an important paradigm shift that I need to keep in mind, particularly when Anne’s depression comes to the fore again. Depression is, fundamentally, a disease like any other that needs to be managed.

Just like a hiker with a bad lung needs to manage their air intake.

IMGP3790

Stigma

26 Jul

When BlogHer asked me to speak at their annual conference on a panel called Mental Health in the Online Space, I wasn’t entirely sure what to expect. For one thing, I’ve never spoken at a conference before, and for another, I’m hardly a professional when it comes to talking about mental health. I mean, sure, I have lots of thoughts and opinions and feelings about it, and I feel pretty comfortable writing about my own experiences, but I’m by no means an expert. In fact, when I first received the invitation to speak I was sure that BlogHer had sent it to me by mistake.  But it turned out not to be a mistake, which is how I found myself sitting in a fancy conference room in a fancy hotel in fancy ol’ Chicago talking about whacky brain things.

The whole thing went pretty smoothly; a lot of it felt like we were preaching to the choir, to be honest. Our audience was mostly made up of people who had either had their own mental health struggles or else had experience with mental illness through their friends and family. Most of what we said was met with sympathetic nods or else comments from audience members who wanted to share similar issues that they’d experienced. About halfway through the session, though, just as I was starting to settle in and feel like I was getting the hang of things, one question caught me by surprise.

One of the panelists had mentioned that she hadn’t told her employer why, exactly, she was speaking at BlogHer, because she hadn’t wanted to divulge her mental health history. This is a pretty common dilemma faced by most people who live with mental illnesses, so I didn’t think anything of it until a hand shot up in the audience.

“I don’t have a mental illness, so I’m sorry if this is offensive,” said the woman, “but you’ve all talked a lot about stigma and, well, if you don’t tell your employer that you’re mentally ill, aren’t you contributing to that stigma?”

At that moment, we all looked at each other, and I could tell that all of us were thinking the same thing:

Ohhhhhh, she doesn’t know.

She doesn’t know that when you tell someone that you’re mentally ill, they look at you differently. When you tell your boss that you’ve struggled with your mental health, they start to treat you like something other, something lesser. Instead of your usual assignments or tasks, you might be asked to take on something a little more boring, more mundane. When you want to know why your role has changed, your boss might tell you that they were concerned that your former duties were too stressful for you. When you try to explain that, no, it’s not like that, you might get a look that’s a cross between father-knows-best and we’re-just-looking-out-for-you.

She doesn’t know that even if you do divulge your status as mentally ill, that doesn’t mean that you can talk about it, casually, as if it’s just another illness. For example, when someone at work asks you how you’re doing, you can never just reply, oh, you know, sad and a little anxious. If you have to take the day off because you woke up to a panic attack and you feel as if the grim, grey sky might crush you if you move from your bed, you can’t tell your employer the real reason why you won’t be at work; instead, you have to fake a convincing cough or else invent disgusting details about a fictional stomach flu.

She doesn’t know that when people talk about mental health in their workplaces, they run the risk of getting fired. Oh, not fired specifically because of mental illness, because that’s illegal, but fired for one of any number of trumped up reasons that their employer might come up with. She doesn’t know that someone can be fired for taking too much time off for doctor’s appointments and therapy sessions, even if those things are necessary in order for them to function. She doesn’t know that someone can be fired while they’re on a leave of absence due to anxiety or depression just because they’ve posted pictures of themselves smiling on Facebook.

I wish I was making that last one up, but I’m not.

Most of all, what this audience member doesn’t know about is the stigma; stigma felt by everyone, your friends, your family, your doctor, and even you, yourself, the mental health advocate. She doesn’t know what it’s like to have to learn as much about your illness as you can because your doctor’s understanding of it is, at best, incomplete. She doesn’t know what it’s like to go to see a psychiatrist, one of the best in his field, and, after you’ve explained your history to him, none of which has been in any way violent, harmful, or neglectful towards others, have him ask if Children’s Aid has ever been involved with your family. She doesn’t understand that those of us who struggle with mental health issues grew up in the same world as everyone else, and we absorbed all the same toxic messages about mental illness that everyone else did. She doesn’t know about how we internalize that stigma, how we have to fight against our own shame, guilt, fear and doubt in order to love ourselves or even just take ourselves seriously.

She doesn’t know about how some of us hate ourselves for these things that are not our fault, and then feel like hypocrites for hating the very things that we’re trying to educate others about.

And that’s the key, isn’t it? Education, I mean. That’s the way to end the stigma and shame and fear. I know that, other mental health advocates know that, and even that woman in the audience knows that – which is why she was asking about how my co-panelist could hide her mental health issues from her employer rather than taking the time to educate them. The fact is that education about mental illness is incredibly important. But (and this is a big but) you can’t put all of the responsibility for educating others solely on the shoulders of mental health advocates. For one thing, it can be exhausting and emotionally draining to try to explain over and over again the particulars of brain chemistry and trauma and he ways that those things can shape your life. For another, being one hundred percent open about your mental health all of the time can, as mentioned above, have real-life consequences. And yeah, in a perfect world you could be like, fuck this job if they’re going to look down on me for an actual, bonafide illness, but we don’t live in a perfect world, and sometimes you have to take what you can get just so that you can pay the bills.

Education about mental illness needs to start earlier for everyone, and it needs to come from the top down. It should be included in grade school health classes, in curriculums designed, in part, by mental health advocates. Education needs to come from doctors, who need to be properly educated themselves about all the ins and outs of the sad, lonely world so many of us find ourselves in. Education needs to be everywhere and be accessible to everyone in the community, because that’s honestly the only way we’re ever going to get to a place where someone can casually say at a dinner party, oh man, I had a manic episode yesterday and coming down sucked but I feel way better now, without everyone else giving them the side eye.

Because I don’t know about you, but I’d be pretty down with living in that world.

tumblr_m1e5nksACb1qeh05po1_500